Unexpected Road Trip

Wish us luck, friends! Today we are off to Cooks Children's Hospital in Ft. Worth, Texas, to get our son the medical attention that he has been waiting for. We had made an appointment for late April, the earliest opening they had (they're booked through June!), but with his seizures increasing from one or two a week, to 20 a day- we need to be seen sooner. Yesterday after a series of emails with a very helpful lady named Carrie (friendly people are rare these days, and I'm truly grateful for her assistance), we got an appointment for today, at 3:15.

For more information on where we're going, the Pediatric Neurology department, click here. I expect in the future we'll be spending a decent amount of time in the epilepsy monitoring unit, probably not this specific trip, but- soon. If you'd like to see more about that, click the link from the last sentence, and scroll down. You'll find the button to the video on the left hand side. The unit looks comfortable (about as comfortable as a hospital can be) and professional, we're very happy to be taking our son there.

We're anxious to get there. We're anxious to be seen. We're anxious to get answers. But like I said in a previous post about all of this... we need to take it one step at a time.

Slow down. Deep breaths...
This is only the first step.

And we're off!