tag:blogger.com,1999:blog-553748830358173771.post4303015594963000784..comments2023-05-27T09:28:35.605-05:00Comments on Christopher And Tia: Charlie's DiagnosisTia Colleenhttp://www.blogger.com/profile/07055062627149820244noreply@blogger.comBlogger41125tag:blogger.com,1999:blog-553748830358173771.post-30758664238022927702010-03-15T08:14:48.767-05:002010-03-15T08:14:48.767-05:00Thank you for sharing your experience and i am so ...Thank you for sharing your experience and i am so happy both of your children are healthy! This is a great read and hopefully those who have children who do the same things as your children get a chance to read this post. It's an eye opener and this just shows you all children are so different. The main thing is they are healthy and now you can stress less about it, knowing that. :DBrandy Lhttps://www.blogger.com/profile/01303928344737430279noreply@blogger.comtag:blogger.com,1999:blog-553748830358173771.post-46946176526468110712010-03-11T23:12:15.776-06:002010-03-11T23:12:15.776-06:00Oh gosh, you strong mama!! Give that little one a ...Oh gosh, you strong mama!! Give that little one a big squeeze for me! So much love.Desireehttps://www.blogger.com/profile/05248779047139738858noreply@blogger.comtag:blogger.com,1999:blog-553748830358173771.post-42115155880301486802010-03-11T15:22:38.599-06:002010-03-11T15:22:38.599-06:00Wow, I don't even know what to say that hasn&#...Wow, I don't even know what to say that hasn't been said already in your comments- what an amazing support network you have here!! I was waiting and waiting to hear about Charlie and let out a big sigh of relief at the end of it all, I'm so happy for you guys that they weren't seizures or epilepsy! I hope you all continue to adjust and revel in the love of a wonderful family~Esmeralda Bohemianhttps://www.blogger.com/profile/08140598770800471041noreply@blogger.comtag:blogger.com,1999:blog-553748830358173771.post-14294371967267294942010-03-10T12:49:33.248-06:002010-03-10T12:49:33.248-06:00Oh thank goodness that it's not epilepsy! I&#...Oh thank goodness that it's not epilepsy! I've never heard of movement disorders either, but as you said, at least he is healthy. :)iampalegreenhttps://www.blogger.com/profile/00545966919183210633noreply@blogger.comtag:blogger.com,1999:blog-553748830358173771.post-66885433930035044412010-03-10T09:05:41.590-06:002010-03-10T09:05:41.590-06:00I'm happy he's okay. And just so you know,...I'm happy he's okay. And just so you know, he is a beautiful little boy.Rachel Elizabethhttps://www.blogger.com/profile/07050119457229635051noreply@blogger.comtag:blogger.com,1999:blog-553748830358173771.post-85070604040695152312010-03-10T00:33:14.351-06:002010-03-10T00:33:14.351-06:00*hugs and tears* i wish i could be there for you t...*hugs and tears* i wish i could be there for you to make some sorta gluten free bagel and play the fat game again. best wishes truly<br />sydagynAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-553748830358173771.post-26061127277918347992010-03-10T00:10:47.239-06:002010-03-10T00:10:47.239-06:00THANK GOD! I'm so relieved! I've never hea...THANK GOD! I'm so relieved! I've never heard of movement disorders before. I'm glad that it's not a big deal though.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-553748830358173771.post-82900830888676108612010-03-09T21:32:26.870-06:002010-03-09T21:32:26.870-06:00So glad he is ok,your ok,everyone is healthy and n...So glad he is ok,your ok,everyone is healthy and now you can try to breath and relax a little bit.<br /><br />please pray for my Ellie,her appt. isn't until the 8th of april and I am ill over the whole situation .WE see the ped. neurologist and I so hopee get good news .Caityhttps://www.blogger.com/profile/16252422630209855667noreply@blogger.comtag:blogger.com,1999:blog-553748830358173771.post-6184887367022847852010-03-09T17:21:01.387-06:002010-03-09T17:21:01.387-06:00what a big relief! so glad you're getting answ...what a big relief! so glad you're getting answers and that you received such a happy surprise! My daughters issue at that age was going rigid- stiff like a stick. It was so embarassing, because to soothe herself she'd go stiff and/or grind into whereever she was sitting. It used to make me nuts...just one of those odd things you experience once you have children! so glad for you and your family, xoxoAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-553748830358173771.post-44501308581586222342010-03-09T15:45:14.353-06:002010-03-09T15:45:14.353-06:00Tia,
Glad to hear Charlie isn't having epile...Tia, <br /><br />Glad to hear Charlie isn't having epileptic seizures!!! Glad you are able to move forward with everything by accepting what is and isn't. <br /><br />On a personal note, I use to rock myself to sleep until I was about seven or eight years old (not sure if it was a SMD). Only when I am extremely exhausted to I rock my foot. Not sure if this helps or not, my point is, there is always room for hope. <br /><br />Sending Hugs,<br />BellzBellz Journeyhttps://www.blogger.com/profile/12865660900214695709noreply@blogger.comtag:blogger.com,1999:blog-553748830358173771.post-14738913439817892602010-03-09T13:43:49.979-06:002010-03-09T13:43:49.979-06:00What a huge relief, Tia! Bless his little heart! I...What a huge relief, Tia! Bless his little heart! I'm so glad he is okay!BeckyKayhttps://www.blogger.com/profile/12403738028988308558noreply@blogger.comtag:blogger.com,1999:blog-553748830358173771.post-22571640595249141512010-03-09T10:03:14.132-06:002010-03-09T10:03:14.132-06:00I am so glad you were able to get in to see the sp...I am so glad you were able to get in to see the specialist so soon...and that you found a place of comfort in The Ronald McDonald House (I know others who have too) and that the big scary diagnosis that could have been has been counted out.<br /><br />Amelia used to do what I call "head bumping" on her pillow when she was a little younger than Charlie. Eventually, she gave it up along with the thumb sucking and learned to comfort herself by playing with her belly button! By three she gave that up too and now she's content with a dolly to cuddle with at bed time. I have a friend, who still does the head rocking and bumping when she's particularly wound at the end of the day and tries to go to sleep. It has no impact on her at all...it's just somethings she does and no one would ever know unless you were bunking with her!<br /><br />It really hard to get a handle of sometimes, but like you said, sometimes you do nothing...and a LOT of the time it's not your fault or anything you can fix :)Alyssa S.https://www.blogger.com/profile/11674708702014878064noreply@blogger.comtag:blogger.com,1999:blog-553748830358173771.post-88772415935467820952010-03-09T09:57:01.396-06:002010-03-09T09:57:01.396-06:00That is so good to hear! I'm glad you got a d...That is so good to hear! I'm glad you got a diagnosis that wasn't as bad as your fears and I know it's still not fun but definitely nothing you guys can't handle. Yay for Charlie!!Reneesancehttps://www.blogger.com/profile/08720276107351995350noreply@blogger.comtag:blogger.com,1999:blog-553748830358173771.post-27150082850637957342010-03-09T09:38:26.587-06:002010-03-09T09:38:26.587-06:00First, can I just say how completely impressed I a...First, can I just say how completely impressed I am by your honesty? I have to admit that I probaby would have been defensive about the fact that I had "diagnosed" him myself (which I totally would have done, while trying to find answers!). And I wouldn't have wanted to be honest about it. You are my inspiration, Tia. No joke.<br /><br />I am convinced that every child has their 'thing'. Sometimes they outgrow it, sometimes they don't. My daughter has a bladder disorder and has bladder infections all the time... she has add and ocd tendancies at the same time. Even the school social worker doesn't 'get' her, lol. But she's perfect. :) My son has a lazy eye and also has ocd tendancies. He's perfect too. :) And I know you feel the same way about Charlie and Elie. You are a great mom, Tia! :)Karin Schuellerhttps://www.blogger.com/profile/12944661601364445825noreply@blogger.comtag:blogger.com,1999:blog-553748830358173771.post-51289508652094954682010-03-09T09:30:30.310-06:002010-03-09T09:30:30.310-06:00I'm so glad you have an answer for Charlie eve...I'm so glad you have an answer for Charlie even if it is not what you expected. "It is what it is" is such an excellent motto for life and I try to adopt it myself although it's not always easy to accept. It sounds like you're doing really well with the diagnosis though. Big hugs & love to you & your family. xo.Adriennehttps://www.blogger.com/profile/16753080033391675743noreply@blogger.comtag:blogger.com,1999:blog-553748830358173771.post-9768800903072092042010-03-09T09:30:30.309-06:002010-03-09T09:30:30.309-06:00Glad to hear your little boy is okay. I have been ...Glad to hear your little boy is okay. I have been thinking about you guys and hoping it wouldn't turn out to be to serious or scary a diagnosis. You have a good head on your shoulders and a loving heart!!! He will be just fine with a momma like you!PensivePixiehttps://www.blogger.com/profile/03710454871962415695noreply@blogger.comtag:blogger.com,1999:blog-553748830358173771.post-50512695927729391722010-03-09T09:17:24.431-06:002010-03-09T09:17:24.431-06:00Wow what an emotonal rollercoaster.
I have the sam...Wow what an emotonal rollercoaster.<br />I have the same reaction to doctors - I immediately question them, because out of experience I've found they don't have the answers and they don't always have the best solution for me. I'm so proud of you for realizing the difference and coming to grips with this. There may be more acceptance to come, but for now, you're doing AMAZING.marihttps://www.blogger.com/profile/01493503931694469770noreply@blogger.comtag:blogger.com,1999:blog-553748830358173771.post-73039131834541330732010-03-09T09:05:09.857-06:002010-03-09T09:05:09.857-06:00Tia...Tia, Tia, Tia. I am SO glad you finally have...Tia...Tia, Tia, Tia. I am SO glad you finally have peace with this, and know what's actually going on. As mentally exhausting as the whole situation is, what a relief it must be to know that things are going to be okay. I know a LOT about the Ronald McDonald house. I've had to stay at them many times due to my brother's health, and mine growing up. You are so right about the emotions that are in that house. It's overwhelming. I never really knew about the emotions because I was young, and all I cared about was meeting other sick kids, playing in the play room and on the playground, and wandering the giant house. Now that I'm old enough to understand, it makes sense. I remember my parents talking with another set of parents one night in the kitchen for hours. I had no idea what they were talking about, but they all had tears in their eyes and seemed to be comforting each other. <br /><br />I know we may not be close and I may not know exactly what it is you're going through, but please know that I really am an email away if you need to talk, okay? <br /><br />Best wishes for your family. <3Anonymoushttps://www.blogger.com/profile/00936031675267577599noreply@blogger.comtag:blogger.com,1999:blog-553748830358173771.post-77363087682018638742010-03-09T08:04:14.919-06:002010-03-09T08:04:14.919-06:00Oh Tia I am so relieved for you. What an emotional...Oh Tia I am so relieved for you. What an emotional roller coaster for you and the family.<br />I will definitely go to that link and read more about Charlie's condition.<br />Love to you!Johannahttps://www.blogger.com/profile/00341166590919510790noreply@blogger.comtag:blogger.com,1999:blog-553748830358173771.post-4147529939879445082010-03-09T07:32:01.708-06:002010-03-09T07:32:01.708-06:00You are absolutely right. It is what is and you wo...You are absolutely right. It is what is and you would change it if you could but you can't. I hope that it is a relief to you that it isn't seizures. <br /><br />I'm so happy that Charlie is ok, Tia.Alitahttps://www.blogger.com/profile/09470698206904719203noreply@blogger.comtag:blogger.com,1999:blog-553748830358173771.post-1109698478007735292010-03-09T06:56:46.048-06:002010-03-09T06:56:46.048-06:00wow! what a relief! i've never heard of such...wow! what a relief! i've never heard of such a thing... but it does make sense! i hope you can all rest easy now! sounds like you might need to rejuvenate!Devonhttps://www.blogger.com/profile/16284466678871353733noreply@blogger.comtag:blogger.com,1999:blog-553748830358173771.post-48973352163577046462010-03-08T23:30:56.739-06:002010-03-08T23:30:56.739-06:00wow, sounds like you have all been through a log! ...wow, sounds like you have all been through a log! I'm glad you are finally getting some answers. ; )Ashley Stonehttps://www.blogger.com/profile/17474790366358568219noreply@blogger.comtag:blogger.com,1999:blog-553748830358173771.post-14596654674938776402010-03-08T22:07:28.774-06:002010-03-08T22:07:28.774-06:00I'm beyond overjoyed at all of this! You, my d...I'm beyond overjoyed at all of this! You, my dear, are an amazing mother and woman and an inspiration. Thank you for being so brave and letting us follow you in your journey to discover what this was all about. And I agree with you...let them both rock, bite, bang, whatever they need to do! As long as they are healthy...it's all good!Chana@ Mamma Townhttps://www.blogger.com/profile/16495725656988893052noreply@blogger.comtag:blogger.com,1999:blog-553748830358173771.post-55934410457068095782010-03-08T21:53:21.668-06:002010-03-08T21:53:21.668-06:00Thanks for writing Tia! Really good to hear it'...Thanks for writing Tia! Really good to hear it's not seizures. I had never heard of the stereotypic movement disorder but after reading about it, I may have some slight experience. But I am not sure b/c no one in my fam was ever diagnosed with it, but maybe had some symptoms. I bite my nails and one site I saw(wiki) said that even can be a slight form of smd, I had no idea! <br /><br />I will pray for Charlie, you and your family as you encounter this together. You are a great family. :)Christinahttps://www.blogger.com/profile/14172014686424638479noreply@blogger.comtag:blogger.com,1999:blog-553748830358173771.post-66409937507910769292010-03-08T21:19:41.413-06:002010-03-08T21:19:41.413-06:00I am so glad that it is nothing serious!!! I'v...I am so glad that it is nothing serious!!! I've never heard of the disorder before. I am happy you guys got answers.Laura Craighttps://www.blogger.com/profile/17510850779101025593noreply@blogger.com